SACHD - Helping Families Across Scotland

Remember to check out our Forthcoming events page which is updated regularly and the fund raising page to see details of fund raising events.

May 2010 - Insurance

If you are looking for Insurance this site may be worth a look.  Feedback suggests it seems to be one of the cheapest.  http://www.insurancewith.com/

April 2010 - Edinburgh Marathon: Fund raising

On 23rd May 2010 Shona Crawford is running the Edinburgh Marathon for the SACHD, but all the money she raises is going to support baby Riley, born with a serious heart condition. 

On the 13th August 1981 Shona herself underwent major open heart surgery to repair a Transposition of the Great Arteries; read Shona and Riley's story at justgiving-shona-running4riley and if you can please donate.

(24th April - The Daily Record published a story about Riley and Shona :
http://www.dailyrecord.co.uk/news/real-life/2010/04/24/riley-had-huge-operation-at-just-one-day-but-he-s-a-baby-braveheart-86908-22208445/ )

April 10 - Lewis receiving his Ipod

Lewis suffered a cardiac arrest at home and as a result developed Tracheal Stenosis and had to have a tracheostomy performed, as a result of this he is unable to talk. SACHD presented Lewis with an Ipod with Talk Assist downloaded on it. This facility allows him to type in what he wants to say and it speaks the words for him.

Nov 2009 - SNIP (Special Needs Information Point)

We'd like to "spread the word" about the Association, let as many families know about us as possible and so for this reason we are going to be working with SNIP (Special Needs Information Point) a charity based at Sick Kids, Edinburgh.

A member of their staff will be at Cardiology clinics in Edinburgh for a couple of hours a week, for a trial period of six months, to raise awareness of the Association amongst the medical and nursing staff, maintain any leaflet/poster display, meet with parents, discuss the SACHD and what we can offer.

June 2009 - The McLean Family have a Great Day out at the Dream Car Rally
 
We have just had a brilliant family day out at the Thirlestane Rally. Everyone in Sporting Bears was so welcoming and kind to us. The Dream Car Team were so kind to Roddy. First of all Roddy and I addressed the Dream Car owners and told them a bit about our charity. Then they took him for a ride in three of the dream cars - a bubble car, a TVR and a Ferrari. The open top TVR was his favourite and he went so fast that he had to promise not to let on to his mum just how fast they went ! He had such fun that the rest of the family ended up paying to have a dream ride too. We have now found a new family hobby! Roddy says to recommend coming along for a dream ride in one of the cars to everyone as it was so much fun. It was our first car rally but we will definately be going back next year - first Sunday in June ! It is great that the drivers gave up their time to help raise money for our charity. A huge thank you to everyone in Sporting Bears. We had a dream day with their dream cars!
Sue McLean

May 2009 - Understanding Your Child's Heart - New BHF CHD Publications

Working closely with paediatric cardiologists, the British Heart Foundation (BHF) has just produced the first six booklets of a new series, Understanding your child’s heart, for the parents and families of babies and young children with congenital heart disease.

Each booklet:

• discusses the way the normal heart works and explains congenital heart disease

• explains a particular congenital heart condition, its diagnosis, symptoms, and treatment

• gives information on coping and contacts for additional support.

Further booklets will become available throughout 2009 and early 2010. For more information on these booklets or the British Heart Foundation, please go to bhf.org.uk

The first six booklets:
• Aortic stenosis
• Coarctation of the aorta
• Large ventricular septal defect
• Pulmonary stenosis
• Tetralogy of Fallot
• Transposition of the great arteries

To download or order your free copies of the booklets and to order your display rack (suggested donation £20), please go directly to the Publication section on the BHF website, email orderline@bhf.org.uk or phone the BHF Orderline on 0870 600 6566